Stay informed

Whether you’re looking to understand more about your symptoms, or you’ve been recently diagnosed with HCM, here are resources to help you learn more about HCM.

Tools and Videos

Symptom Check in

Answer this questionnaire to help monitor your symptoms and bring it with you to your next appointment to discuss with your cardiologist.

Informative Videos

Family History

Dr Michael Ackerman, a cardiologist and geneticist, explains the importance of knowing your family’s heart health history.

Patient Perspectives

Living with HCM: A Physical Journey

HCM can significantly impact your physical health, causing breathlessness, exhaustion and other debilitating symptoms. Hear from real patients as they describe their physical challenges and how talking openly with their doctors helped them find ways to manage HCM. Don't suffer in silence – your story matters.

Living with HCM:
Beyond isolation

HCM can make it difficult to connect with others and participate in social activities. Hear from real patients as they share their experiences with the social challenges of HCM and how they've found support. Learn how sharing your story can help you rebuild your social life.

Living with HCM:
Coping with the Emotional Burden

HCM can have a huge emotional impact with anxiety, fear and uncertainty. Hear from real patients as they share their emotional struggles and discover how open discussions with your doctor can lead to better management of HCM and a path toward emotional well-being.

Patient stories:
Hear from Ian

Ian shares his personal journey from when he first experienced symptoms to when he received his diagnosis.

Patient stories:
Hear from Steffi

Steffi shares her story about finding the cause of her symptoms and being diagnosed with HCM.

Patient stories:
Signs & symptoms of HCM

Watch as patients share their unique personal experiences, from the first signs that something wasn’t right to being diagnosed with HCM.

Patient stories:
Uncovering a HCM diagnosis

Patients tell how they became more aware, educated, and empowered with a correct HCM diagnosis.

Patient Advocacy Groups

Cardiomyopathy Australia New Zealand (CMANZ)

CMANZ is a not-for-profit organisation focused on supporting and advocating for individuals impacted by cardiomyopathy in Australia and New Zealand.

www.cmanz.org.au

Heart Support Australia

Heart Support Australia is the peak national body providing support to Australians affected by heart disease through peer support. It is a national consumer organisation providing support, encouragement, education and advocacy for heart disease patients and their families.

www.heartsupport.org.au

Heart Foundation

The Heart Foundation provides valuable resources and support for Australians living with HCM. Find information about HCM, connect with support networks, and learn about managing your condition. They offer resources to help you understand your diagnosis, navigate treatment options, and live a full and healthy life.

www.heartfoundation.org.au

CV-AU-2500002. April 2025.